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Nihal Bitla, face of Progeria in India, passes away

by IBNS 04 May 2016, 07:19 am

Telangana, May 4 (IBNS) Nihal Bitla, the face of Progeria in India, passed away on Tuesday at a hospital in Telangana,reports said.

The 15-year-old suffered from Hutchinson–Gilford progeria syndrome (HGPS), the rare disorder which accelerates the ageing process and causes hair loss, rendering an older look.

The Facebook page of Team Nihal, a group that manages the campaign, wrote, "Nihal, your contagious smile, positive attitude, inspiring chats, optimistic outlook will give us strength for years to come. You have left us behind with heavy hearts for a higher place, Rest in peace our dear friend. Our thoughts and condolences with family and friends."

Nihal was diagnosed with the disease at the age of one. He used to campaign about the condition and helped other kids suffering from the same come in terms with theirs.

Bollywood actor Amitabh Bachchan portrayed one such character in his critically acclaimed movie Paa, directed by R Balki.